Do you have a disenfranchised medical struggle -- a real, long-term problem that seriously affects your quality of life but nobody would ever talk about in public? Has its disenfranchisement affected the quality of healthcare available to you?

medical, g.i. 

@bobbyd0g
my wife did for about a decade — cyclic vomiting attacks, only resolved when her compounding health problems led to nearly-fatal liver failure

basically nobody would believe her on "i can only keep down like <500 calories most days" so none of the many doctors she saw felt any sense of urgency about treating this

medical, g.i. 

@bobbyd0g
for a few years we could get 1-2 doses of a hardcore antiemetic at hospital urgent care, then they stopped doing that

all of her long-term doctors would be like, "we should treat the causes, not the symptoms" and then just kinda shrug and do nothing when they couldn't figure out the cause

most doctors' entire knowledge of cyclic vomiting type conditions seems to be "i heard once it is caused by weed"

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medical, g.i. 

@saddestrobots Zofran may not be THE answer, but it's AN answer… Funny how doctors are so negatively ethical and that commitment often just vanishes before a challenge. And yeah that last one kills me because the sativa is the reason I eat every day. at least twice! i ❤️ 🌲

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